Only one in 500,000 people in the world are born with harlequin ichthyosis. Mui Thomas, 26, of Hong Kong is one of those people. “Harlequin ichthyosis is a very rare genetic skin disorder,” Mui told ...
It’s less than a minute into our interview when the subject of Mui Thomas’s life expectancy comes up. Afflicted with the rare skin condition harlequin ichthyosis, Thomas calmly mentions that the ...
Mui Thomas suffers from harlequin itchyosis, meaning she sheds the same amount of skin overnight that most people do in a fortnight, leaving her body raw and prone to infection. But on top of her ...
Mui Thomas's story of living with a rare skin disease has moved many. Now, her adoptive parents share why they ignored advice to 'walk away' Mui Thomas is, by any measure, a remarkable woman. Now 33, ...
Mui Thomas is a 22-year-old woman who has a full-time job working with people with special needs. She is also a volunteer referee for kids’ rugby matches and will soon be embarking on a career as a ...