AI has the potential to help with hemophilia diagnosis and management, but more evidence is needed, a study found.

MacDonald bids readers farewell, she thanks her bleeding disorders community for following along with her story.

When our sons were younger, my wife, Cazandra, and I struggled to balance our jobs, our relationship, and their very different needs. When our younger son, Caeleb, was between the ages of 5 and 8, ...

Guest writer Maria Relynda De Guzman shares her experience seeking diagnosis and care for her son's severe hemophilia in the ...

Columnist Joe MacDonald writes about developing a meditation exercise to counteract the long-term stress of his son's hospitalizations.

Columnist Allyx Formalejo shares insight into how being a parent with a disability affects their daughter as she grows older.

Columnist Jennifer Lynne writes about the free online screening her organization, Girls Bleed Too, will host on Oct. 8 for "Dismissed." ...

A branch of the European Medicines Agency (EMA) has recommended that the experimental therapy denecimig be approved to treat adults and children with hemophilia A, with or without inhibitors. The ...

Here is something many people do not know about me: I spent a year studying industrial pharmacy. I don’t always think to mention it. After all, I never earned the degree. I had attended a science high ...

There’s a specific kind of exhaustion that comes from being asked — mid-appointment or on a call with my specialty pharmacy — to recall something my body has already tried to forget. When was your ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google I never saw myself as an athlete. In middle school, I played ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google Hemophilia B is a genetic condition caused by missing or ...