Childhood Dementia: Parents of children with rare disorder rally support for a cure
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Mom reveals the subtle sign her kids had 'childhood dementia'
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My son has childhood dementia because of Sanfilippo syndrome. A rare neurodegenerative disease that causes progressive skill loss and a very short life. When he was 3 years old he had not started regressing from the disease yet. He was sassy and funny and determined to do things his own way. His only diagnosis at this point was a speech delay we thought he would grow out of. When he was 5 we saw him start to regress and we had no idea why. He had ASD added to his diagnoses. There is a therapy th
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