Living in a different state, I don’t get nearly enough moments like this, so we make the most of it. We eat ice cream, make messes, say bad words, and giggle as all nieces and aunties should. My goal in sharing Sadie’s story has always been to show the girl beyond the Sanfilippo diagnosis. Yes, it impacts every part of her life, but she still feels and loves deeply. She has more joy than most people will ever know. Her ability to share that joy with others is remarkable. Even though she’s lost m
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