419K views · 14K reactions | Abby's Alliance - Battling Sanfilippo Syndrome Cure Sanfilippo Foundation National MPS Society Team Sanfilippo TSF INC #memories | Taci Lynn | Facebook
0:08
419K views · 14K reactions | Abby's Alliance - Battling Sanfilippo Synd…
156K views1 month ago
FacebookTaci Lynn
10K views · 100 reactions | She is so inspiring  | Metro | Facebook
3:01
10K views · 100 reactions | She is so inspiring  | Metro | Facebook
10.3K views6 days ago
FacebookMetro
9.7K views · 115 reactions | Muskego parents were given a life-changing diagnosis. Their 3-year-old girl has a rare genetic disorder with no cure, but the family is not giving up hope. MORE: https://bit.ly/3Bcmma1 | FOX6 News Milwaukee | Facebook
3:08
9.7K views · 115 reactions | Muskego parents were given a lif…
9.7K views1 month ago
FacebookFOX6 News Milwaukee
10K views · 268 reactions | Always ready to fight for a cure for Sanfilippo Syndrome and all forms of childhood dementia, on all platforms available! The government and their "theatrics" will never stop our fight! ✨ | Haidyn’s Hope - A Cure for Sanfilippo Syndrome | Facebook
1:04
10K views · 268 reactions | Always ready to fight for a cure for Sanfili…
6.1K views2 weeks ago
FacebookHaidyn’s Hope - A Cure for Sanfilippo Syndrome
What Causes Sanfilippo Syndrome | Cure Sanfilippo Foundation
What Causes Sanfilippo Syndrome | Cure Sanfilippo Foundation
Aug 8, 2023
curesanfilippofoundation.org
Cure Clark 5K event raises awareness and critical funds for Sanfilippo syndrome
1:06
Cure Clark 5K event raises awareness and critical funds for S…
6 months ago
MSNFox 47 News WSYM Lansing,MI
Sanfilippo Syndrome can't steal the sunshine in her heart. | Haidyn’s Hope - A Cure for Sanfilippo Syndrome
0:16
Sanfilippo Syndrome can't steal the sunshine in her heart. | Haidyn’s H…
12.5K views4 months ago
FacebookHaidyn’s Hope - A Cure for Sanfilippo Syndrome
0:40
56K views · 703 reactions | A peek inside life with Sanfilippo. @Abby'…
46.7K views2 weeks ago
FacebookCure Sanfilippo Foundation
1:13
16K views · 60 reactions | Sanfilippo Syndrome, otherwise known as C…
6.2K views2 weeks ago
FacebookFox Carolina News
1:24
147K views · 2.6K reactions | We hope that Sanfilippo syndrome wil…
81.4K views1 week ago
FacebookSaving Sadie Rae: Cure Sanfilippo
0:27
131K views · 1.7K reactions | Around 80-90% of kids with Sanfili…
68.7K views6 days ago
FacebookSaving Sadie Rae: Cure Sanfilippo
0:12
Sanfilippo syndrome causes unique physical traits. This is why many o…
88.6K viewsAug 21, 2023
FacebookSaving Sadie Rae: Cure Sanfilippo
1:50
Sadie has never learned to read due to Sanfilippo syndrome, but she h…
42.2K views10 months ago
FacebookSaving Sadie Rae: Cure Sanfilippo
1:22
101K views · 2K reactions | This has to be fate. Sanfilippo Syndrome...
48.1K views2 weeks ago
FacebookSaving Sadie Rae: Cure Sanfilippo
0:48
Sanfilippo syndrome is so much more than just facial features. We …
138.8K views9 months ago
FacebookSaving Sadie Rae: Cure Sanfilippo
0:47
This kid is impossible to buy for because of Sanfilippo syndrome. …
338.8K viewsFeb 15, 2025
FacebookSaving Sadie Rae: Cure Sanfilippo
0:56
This is Trenton's story. Our journey with Sanfilippo syndrome | Cure S…
35K viewsSep 1, 2023
FacebookCure Sanfilippo Foundation
1:29
Jase has an attenuated form of Sanfilippo Syndrome. | Cure Sanfil…
997 viewsAug 17, 2024
FacebookCure Sanfilippo Foundation
11:28
How the Cure Sanfilippo Foundation is helping to get rid of a devastati…
May 20, 2024
khou.com
8:21
What is Sanfilippo Syndrome? Meet a wonderful family and beautiful gi…
138.6K viewsMay 5, 2020
FacebookCure Sanfilippo Foundation
0:30
Today we’re going to a funeral for a little girl who also had Sanfilippo …
201.7K viewsNov 28, 2023
FacebookSaving Sadie Rae: Cure Sanfilippo
What is the Prognosis of Sanfilippo Syndrome? | Cure Sanfilippo Foun…
10 months ago
curesanfilippofoundation.org
13:10
EPISODE #7: “A Close Look At Sanfilippo” is a regular 10-minute …
5.7K viewsOct 27, 2021
FacebookCure Sanfilippo Foundation
1:30
3.9K views · 74 reactions | This is how we do it … Creating Alex’s ni…
1.9K views1 week ago
FacebookCure Sanfilippo Foundation
4:51
Suggested accounts
36.4K views2 months ago
TikTokcurepoppyandoliver
0:25
Snow day! #snowday #sanfilipposyndrome #savingsadi…
230.5K viewsJan 22, 2025
FacebookSaving Sadie Rae: Cure Sanfilippo
2:08
45K views · 3.5K reactions | That went downhill fast   #cookiech…
98.9K views6 days ago
FacebookSaving Sadie Rae: Cure Sanfilippo
0:20
Birth Trauma Stories Podcast on Instagram: "In this week’s episode…
13.5K views1 month ago
Instagrambirthtraumastoriespodcast
0:07
Crue has Sanfilippo Syndrome a rare, terminal genetic disorder lik…
324 views3 weeks ago
TikTokcurecrue
0:06
I want a cure for Sanfilippo Syndrome I want a cure for Crue I …
429 views1 month ago
TikTokcurecrue
See more videos
Static thumbnail place holder